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Calidad de Vida y Asma: Bibliografía de interes

Resumen

En esta sección mostramos una selección de citas bibliográficas de interés para quien desee profundizar en el tema.

Bibliografía General

1.-Osman L, Silverman M: Measuring quality of life for young children with asthma and their families. Eur Resp J 1996;9:supp 21:35s-41s.

2.-Pedersen S. What are the goals of treating padiatric asthma? Pe diatric Pulmonol 1997;supl 15:22-6.

3.-Wilson I, Cleary P. Linking Clinical variables with Health-Related Quality of Life. A
conceptual model of patient outcomes. JAMA 1995. p. 59-65.

4.-Hunt SM, Alonso J, Bucquet N, Niero M, Wiklund I, McKenna S. Cross- cultural adaptation of health mesures. Health Policy 1991;19:34-44.

5.-Guillemin F, Bombardier C, Beaton D. Cross-cultural adaptation of health-related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol 1993;12:1417-32.

Cuestionarios de E. Juniper

1.-Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M. Measuring quality of life in children with asthma. Quality of Life Research 1996; 5: 35-46.

2.-Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M. Measuring quality of life in the parents of children with asthma. Quality of Life Research 1996; 5: 27-34.

3.-Guyatt GH, Juniper EF, Feeny DH, Griffith LE. Children and adult perceptions of childhood asthma. Pediatrics 1997; 99: 165-8.

4.-Juniper EF, Guyatt GH, Feeny DH, Griffith LE, Ferrie PJ. Minimum skills required by children to complete health-related quality of life instruments: comparison of instruments for measuring asthma-specific quality of life. Eur Respir J 1997; 10: 2285-2294.

5.-Juniper E. How important is Quality of Life in Pediatrica Asthma? Ped Pulmonol 1997: 15(S): 17-21

6.-Guyatt GH, Juniper E. Interpreting treatment effects in randomised trials. BMJ. 1998 Feb 28;316(7132):690-3.

7.-E Juniper. Quality of life questionnaires: does statistically significant = clinically important? Allergy Clin Immunol. 1998 Jul;102(1):16-7

Validacion de la Versión en Español

1.-.Tauler E, Grau G, González A, Sánchez E, Figueras G, Vall O, et al. Metric properties of the Spanish version of the paediatric asthma quality of life questionnaire (PAQLQ). Qual Life Res 1999;8:645.

2.-.Tauler E. Quality of life among pediatric asthma patients. Immunol Immunopathol 2000;28:168-75.

5.- Tauler E, Vilagut G, Grau G, González A, Sánchez E, Figueras G, et al. The Spanish version of the Paediatric Asthma Quality of Life Questionnaire (PAQLQ): metric characteristics and equivalence with the original version. Qual Life Res 2001;10:81-91.

4.-.Tauler E, Grau G, González G, Sánchez E, Figueras G, Vall O, et al. Resultados finales de la validación de la versión española del Paediatric Asthma Quality of Life Questionnaire (PAQLQ): Cuestionario de Calidad de vida en niños con asma. Immunol Immunopathol 2000;28:187.

5.-. Badia X, García-Hernández G, Cobos N, López-Lavid C, Nocea G, Roset M (grupo VALAIR). Validación de la versión española del Paediatric Quality of Life Questionnaire en la valoración de la calidad de vida del niño asmático. Med Clin (Barc) 2001;116:565-72.

6.-Alonso E. Utilization and clinical validation of the Spanish version of the Pediatric Asthma Quality of Life Questionnaire (PAQLQ) and the Diary for Caregivers of Asthmatic Children (DCA). VALAIR study. Allergol Immunopathol (Madr) 2000 ; 28:175-83

EuroQol

1.-The EuroQoL Group Title EuroQoL-a new facility for the measurement of health-related quality of life. Health Policy (1990;16(3):199-208).

2.- Dolan P. Modelling valuations for EuroQoL health states. Med Care (1997;35(11:1095-108.)

3.-Kind P, Dolan P, Gudex C, Williams A. Variations in population health status: results from a United Kingdom national questionnaire survey. BMG (1998;316: 736-741).

4.-Roset M, Badia X, Mayo NE. Sample size calculations in studies using the EuroQoL 5D. Qual Life Res (1999;8(6):539-49).

5.-Brooks R.  EuroQoL: the current state of play. Health Policy (1996;37(1):53-72)

6.-Badia Llach X, Herdman M, Schiaffino A. Determining correspondence between scores on the EQ-5D "thermometer" and a 5-point categorical rating scale. Med Care. 1999 Jul;37(7):671-7.

Validacion de la Versión en Español

1.- Badia X, Roset M, Montserrat S, Herdman M, Segura A. The Spanish version of EuroQol: a description and its applications. European Quality of Life scale. Med Clin (Barc) 1999;112 (Suppl 1): 79-85